Public overdoses and my friend is a lifesaving superhero at a all-day-breakfast restaurant.

Public overdoses and my friend is a lifesaving superhero at a all-day-breakfast restaurant.

What were you up to at 3AM? Oh, just looking for an article about the increase in public overdoses of opioids and what that says about the power of addiction, the danger of the fentanyl-laced drug, and the will of people to, despite their dire state, be saved.

I couldn’t find the specific article, but I promise it exists and this is not an academic publication so sue me. The NYT article below about availability of Narcan as a health and safety measure like CPR training and AEDs in public places is good, too. I’m for it because I’m for life saving.

I’m going to tell someone else’s story; I’ve asked permission. This happened recently. Of the six of you who read this five probably know her. To know her is to love her, get ready to love this too, especially if you’re nursey and can do that thing we do where we care about people to a degree that we dedicate our lives to them but at our core lies a daaaark and morbid sense of humor.

So our friend is a recent PhD in nursing. A person who commiserated with me in when I was walking in the valley of clinical care is scary gross by saying “I knew it wasn’t for me the first time I emptied a peritoneal dialysis bag.” She’s an empath to the nth degree. Terrifically gifted in the field of psychology. Destined to be great to innumerable patients and, if there is justice, the wider field of psych/nursing/medicine. She is however not into emergency or critical care.

She’s in a medium sized city in the south, enjoying her favorite breakfast-all-day chain restaurant with her man, just having given their orders to their waiter who looks exactly like you would expect a breakfast-all-day chain restaurant waiter to look. The youngish ones. In the kitchen there is a commotion being made. Staff is peeling away from the dining room, forming a crowd. SOMEBODY DO SOMETHING is hollered. Our friend, the gifted psych nurse, is getting a look from her man (also a doctor of not medicine).

IS ANYONE HERE A DOCTOR?

Shit.

She’s getting the go get ‘em tiger from her fella. She rises, whispers to the backs of the crowd “I’m a nurse.”

SHE’S A NURSE” Hollers her dude with the authoritative bass of a public lecturer. The sea of people parts.

It’s their waiter, passed out on the floor of the breakfast-all-day restaurant kitchen. She is hella smart, so clinical person or not she can handle an OD. She activates that emergency response system (call 911, damn it), asks for an AED (there is none–what?!), checks that carotid pulse for not more than ten seconds (absent), and starts high quality chest compressions times thirty at a rate of not less than one hundred per minute with two rescue breaths between cycles.

Woman saved a life, people. SHE SAVED A LIFE.

EMS comes in narcannons blazing and brings the victim back. Poof. Death-be-gone.

Sigh. So that is our girl. My girl. My nurse friend and mentor. It feels good to know someone this gangster.

In summation: the opioid crisis is real, everyone must learn CPR, Narcan should be in first aid kits, and let’s address institutional cycle of poverty creating helplessness and hopelessness in economically depressed areas such as the stripped-bare resource colonies of the southeast leading to physical manifestations of what might be at the root existential disability and the introduction of opioids.

St. Elizabeths Asylum, Washington, DC.

St. Elizabeths Asylum, Washington, DC.

Lo, I did write thee a splendid piece on my visit to the National Building Museum exhibit on Washington, DC’s great Asylum hospital, St. Elizabeths (no apostrophe). But ay I did it waiting for a surgery to close, needing something to do something with my nervous energy. The patient, when asked the standard pre-surgical question “Why are you here with us today?” (assesses orientation, assures that the patient is informed, confirms procedure), answered “I am dying.” Always believe the patient who says they are dying.

Crash cart at my side, fellow nurse and I finished planning our I-hope-this-doesn’t-turn-into-a-code, I typed out a gem. And upon finishing, ran off to do a thing and lost it.

Instead, here is an excerpt of a letter written by Dr. Charles Nichols, superintendent, to Dorthea Dix (nurse, hero) the greatest advocate for mental health that ever lived whose actions led to the establishment of the hospital, on the selection of a site.

The moral treatment of the insane, with reference to their cure, consists mainly in eliciting an exercise of the attention with things rational, agreeable, and foreign to the subject of delusion; and the more constant and absorbing is such exercise, the more rapid and effectual will be the recovery; but many unbroken hours must elapse each day, during which it is on every account impracticable to make any direct active effort to engage and occupy the patients’ minds. Now, nothing gratifies the taste, and spontaneously enlists the attention, of so large a class of persons, as combinations of beautiful natural scenery, varied and enriched by the hand of man; and it may be asserted with much confidence, that the expenditure of a thousand dollars each year, directed to the single object of promoting the healthy mental occupation of one hundred insane persons, with either amusements or labor, would not be so effectual in recalling reason to its throne, as will the grand panorama of nature and of art, which the peculiar position of the site chosen happily commands. The shifting incidents of the navigation of the Potomac, the flight of railroad cars to and from the city, the operations at the Navy Yard, &c., will continually renew and vary the interest of the scene.

It lifts my iron anchor of a heart to read about this period in time, the asylum movement. Started by Quakers and somehow collecting political support for the mission to create a place, tranquil and serene, to house and heal vulnerable, imprisoned, and cast away persons suffering from mental illness. Public funding! Our government and the people it represents setting aside money to better provide for its poorliest members. Acknowledgement that all people have dignity and value.

**I know you’re thinking asylum? You mean those places where people are locked up and tortured and experimented on? Yes, terrible. But I’ll refer you to the many, many atrocities committed against those walking free: people of colorindigent people seeking care at public hospitals. Medical ethics has an awful lot to answer for. It’s my speculation that we pin it all so easily on asylums, place all our unquiet ghosts there, because of the fear and stigma bound to mental illness. Chew on that. I digress.

Asylums were conceived in goodness. Every pure-hearted reformer may know exactly where the road paved with their good intentions will end up, but I’m glad that they’re trying. We keep trying. We should always be trying.

PS- As Dr. Nichols states, I’m in favor of doing anything that “recalls reason to it’s throne.” Especially in this nuthouse town.

Great achievements in public funding

Great achievements in public funding

This past couple of weeks have worn us health policy people down to sad little nubs. In this climate, where cruel and wildly irrational plans are proposed then taken for serious, scored and picked apart by award winning economists…Well it’s no impossible task to pull some data together showing in fact old people do deserve food and disabled children deserve health care. Mounting a well reasoned, sound argument against such insane hypocrisy is indeed possible, but exhausting and futile. Crazy doesn’t listen.

So where are we then? I’m at a loss of how to write about any of the proposed cuts, the losses in insurance coverage for the most in need. Maybe I’m overworked and underfed and teetering on the edge of freaking the freak out but I can’t bring myself to mount a statistical argument for basic human rights.

So I’m going to tell a story instead.

It was the late 1950s and everything was in black and white. A little boy who had been born a surprise was eight years old in Phoenix, Arizona. His early memories of horseback riding in the desert with his two older brothers were of always, always getting the donkey. He swam like a fish. He liked science and had a microscope with real glass slides. He had a nickname whose existence he would, after escaping to college, refuse to speak of (it was Kelly).

The boy was the baby in a family whose two oldest had already fled the troubled scene. He was a native born go along to get along. When the joints in his hands became hot and painful, he didn’t mention it. For some unknowable amount of weeks he would struggle to turn door knobs, button his dungarees, and comb his Beaver Cleaver side part. Finally, unobtrusive Kelly had to ask his mother to help him turn on the water for his bath, his hands stubbornly refusing to form a grip.

He was shopped around from doctor to doctor in the desert town. A number of perplexed specialists later my father was referred to The National Institutes of Health in Bethesda, Maryland. He was all wrong for his diagnosis. Lupus presents in women, not men. In adults, not children. All the same he was enrolled at NIH and became a patient at the Clinical Center. Without prior cases for reference, his initial life expectancy was in the range of months.

Lupus and its treatment took a toll him. At high doses the steroid bloating turned him unrecognizably moon-faced. It robbed him of physical growth. He’d never catch up to his sister and brothers, all between 6′ and 6’5″. But in defiance of his early death sentence and thanks to that Ellis Island of medicine that took him in the little boy would go on to live for months, then years, decades, and into the better part of a century. And NIH would have one hell of a longitudinal case study.

The boy went back to Catholic school where he practiced disruptive anti-authoritarian behaviors on the Sisters. He survived college despite a heavy smoking habit and special trick of putting out his cigarettes by balancing them on their filter end and waiting for them to burn themselves out. He went to work in Washington, DC and happily complied with the dress code by wearing a comically wide tie that fell several inches above his belly button. Beating the greatest odds since that childhood diagnosis, he found the woman who would be my mother and they fell in love. Exactly halfway through his medical miracle life I was born. Over the next years came my brother and my sister.

NIH saved my family by saving my father as a child. They did it again forty years later when as a teen I was diagnosed with lupus, too. A decade after that they were the ones who had funded the studies and knew the science and armed me with the best possible interventions as I ran the gauntlet of the first generation of women to attempt lupus pregnancy. I had a healthy son.

They have all of my gratitude and admiration, several hundred gallons of my blood, and the full sequence of my DNA. I owe them way more.

Thus endeth the story.

My fierce loyalty to the NIH is not only about the comprehensive care of the Clinical Center or the heroic research. Rather, I’m loyal to this national institution dedicated to protecting public health and lessening the burden of human suffering and disease. The clinicians and scientists who make NIH their life’s work are the smartest people in the world (I say WORLD because they’ve come from all over the planet to be here). Even more stunning, they are giving their gifts to public service. I don’t believe that I am entirely naive in saying the greatest dividends on investment in NIH are contributions to the welfare of human kind. Sure, I could put a number on this. But I told you I’m not doing statistics today.

PS- Sometimes I sit in the NIH cafeteria and pretend to read a book while listening to you geniuses talk about your work. Star. Struck.

Last week in health care

Last week in health care

As far as health news for Americans last week was, much like a circus fire, INTENSE. Here in the Capital “Thunder” Dome there was the braying of donkeys, the stampeding of elephants, the crunching sound of every member of the health care community beating their skulls against the walls, and the immense heat of electronic devices tripping breakers over and over as the grid (and I, via bourbon) experienced rolling blackouts.

I stayed up late and got up early and skipped all my meals in an attempt to stay current, but unlike our president I will not make assertions that that means I’m functioning. Hm, maybe he’s just tired and cranky?

Things of importance from this week:

#1 Healthcare Triage short video on understanding the AHCA. You can see that Aaron Carroll is about 85% of the way to his breaking point here. And good god there were still two more days to go in the week.

#2 Paul Ryan shows he’s a bit shaky on what insurance is (we all pay for fire insurance so that if you have the terrible fortune of your house catching on fire, you are not financially devastated). BUT MR. RYAN WHY SHOULD I BUY FIRE INSURANCE WHEN MY HOUSE IS NOT AT PRESENT ON FIRE?

#2 Emma Sandoe, quickly becoming my favorite voice on the internet, expert in Medicaid, with this tweet (Poor people were once human people like me? No…)

https://twitter.com/emma_sandoe/status/839877905882759168

#3 In response to the question: what mandates do the Republicans object to? “Men paying for prenatal care.” Buh..uh..wha..wait. Since no man has ever been born or engaged in an act that might conceive a child.

#4 The AMA, ANA, AHA, and any lobbying association representing direct patient care declare the American Health Care Act to be one hot unsustainable mess. For the uninitiated, this is lions laying with lambs stuff. The orgs are not friends, and we seem to be arguing into a void at this point.

#5 The Washington Post editorial section posts a satire that would make Alexander Pope holler “SWEET BURN” in his grave. Per the Dems response to the AHCA:

“Mr. Gorbachev,” as Reagan so stirringly said, “This wall desperately needs revision.”

#6 Our collective desire to continue living is affirmed by a BBC Asia expert in his home office in Korea when his children pull back that hollow-core door veneer that keeps us believing that what we say and do is suit-and-tie worthy and crucial to the survival of humanity. From his IDAF toddler in her you’re-not-going-to-miss-this-dance yellow shirt to the younger sibling in the most successful comedy vehicle since the American Pie movies. It had to be the mom, btw. That was a woman bolting off the toilet to save her family.

Cheers to this week! Hope you’re well rested.

 

Medicaid block grant HC Triage and a quiz.

Medicaid block grant HC Triage and a quiz.

So you’re an audio/visual learner. Maybe you prefer to watch Aaron Carroll talk about Medicaid block grants on Healthcare Triage. Five minutes to being smart enough to policy wrestle any date in the D.C. metro area this week. THERE WILL BE A QUIZ.

1.) What are some of the “perverse incentives” created by Medicaid’s current funding model? (HINT: think fee-for-service care). Does block granting address these incentives? Include direct and indirect implications for state budgets.

2.) If per-person spending has remained relatively flat, and Dr. Carroll is correct in saying that the increase in overall Medicaid spending comes from the increased number of enrollees, and enrollment eligibility is tied to the federal poverty level (as well as qualifying criteria such as being a child, a pregnant woman, or disabled) what can we assume about poverty in America? HINT: I really pointed you right at this one. You don’t need a hint.

Now go out there and get’em.

EXPLAINER: How Would Republican Plans for Medicaid Block Grants Actually Work? And what’s my problem?

EXPLAINER: How Would Republican Plans for Medicaid Block Grants Actually Work? And what’s my problem?

 

There’s no magic in how Congress reduces spending under a block grant mechanism. It just says it will do so, and leaves the hard decisions to others. It’s possible that some states will come up with solutions we haven’t been able to see before, and find a way to reduce spending without causing problems. If they can’t, though, they will have to make do with less, make the hard choices and face the brunt of the blame.

This column is A++. Apparently, block grants are simple: states are given a set amount of money to sustain their Medicaid population. If their needs exceed that amount the state has to come up with the difference or make cuts: recipients, services, costs covered. States that rely on a higher percentage of federal dollars for Medicaid are more likely to come up short in this equation. Many of these states have things in common. They are poorer, health disparities greater, outcomes worse. The fear is that these states, already behind, will slip further if a gap in funding grew. It disconcerts me greatly that Americans are resigned to the great divides that exist among us in health measures and life expectancy. Block grants forewarn of further disengagement of rich from the poor, North from the South, urban from rural, one race from another. Our federal government and it’s protective policies and programs unite us, remind us that we are in fact one nation, interdependent.

Sometimes I pledge allegiance to bureaucracy. When nothing else will hold us equal, it comes in with it’s maddening and obstinate rules. It does.

Thank you for marching. Love, Me.

Thank you for marching. Love, Me.

I knew by last Wednesday I wouldn’t make it to the march. My six-year-old had had a fever for 3 days, I was calling out of work and trying to get him to the doctor, and my nursing work schedule included non-negotiable 12 hour shifts on Friday and Sunday.

I was desperately sad when I woke up on Saturday and, like every normal human, pulled my phone from under my pillow and started scrolling twitter. All these beautiful women I love and admire, my friends! Together on The National Mall with their children. Arms linked, posters cutting, experiencing history’s counterpoint to Friday’s stiff and depressing presidential inauguration. And here I was in my PJs. A bad mom for not bringing my son to the momentous even, a bad woman for skipping the rising up of the sisterhood.

But wait, forget that guilt. You marched for me. I’m a single parent of a young child. I struggle with being a mom without a partner or adequate child support, a professional with no job flexibility to accommodate my role as parent, and due to the unaffordable nature of childcare lean on the support of my own mother to help raise my child. Also, I’m a cancer survivor and the ACA keeps me covered with health insurance and free from the fear of medical bankruptcy. Last, I am fortunate in this time of health professional shortages to work with a diversity of talented professionals from all over the world. I worry that through fear mongering or bad policy I will lose these irreplaceable nurse, tech, and doctor colleagues caring for our sick and elderly.

So to everyone who marched–I couldn’t be there on Saturday to show my support. I am forever grateful to you for marching.